Lily is a little girl who carries the scars of a battle no child should ever face. At just 7 years old, she suffers from EB Blistering Skin Disease, one of the cruelest conditions known – so rare that many people have never even heard of it. To us, she’s more than just a sad story. Lily is the reason we’ve come together as a team, determined to change her life and the lives of other children like her.

Every day, Lily wakes up in a fragile body, with 80% of her skin wounded, bleeding, and covered in blisters. Simple things, like putting on a shirt or lying in bed, become unimaginable tortures. Any touch or pressure can rip off pieces of her skin. Because of this, a warm hug – that simple gesture of comfort every child deserves – can be dangerous, even deadly.

For us, as a team dedicated to helping Lily, it’s heartbreaking to witness what she endures daily. The routine bandage changes are one of the most excruciating parts of her life. The bandages stick to her wounds, tearing off her skin when removed, leaving her bleeding and crying. It’s so traumatic that she needs regular blood transfusions just to survive.

But what drives us to keep fighting is Lily’s spirit. Even through her immense pain, she finds the strength to smile. She reminds us every day why we must never give up this fight.

Together, we can make a difference
Our team isn’t just made up of doctors, scientists, and volunteers – it includes you. That’s why we’re here: to unite forces and give Lily a chance at a life with less pain and more hope.

Your contribution can help in so many ways:

Providing special bandages that minimize Lily’s pain.
Supporting the blood transfusions that keep her strong.
Funding research for a cure to EB, giving Lily and thousands of other children a future.
Lily cannot face this alone – but together, we are stronger than this disease. We believe that, with your help, we can change her story.

How you can be part of this team
Every donation, big or small, makes an enormous difference. When you contribute, you join our team and become part of something greater: a fight for lives, for love, and for hope.

Let’s fight for Lily together. Let’s be the team she needs.

Donate now and help Lily live with less pain and more smiles. She needs you.